How Jonah’s parents are connecting families with his rare disease -and how you can too

As an online manager of international patient communities for many different rare diseases, I receive emails every day from parents and affected people looking for help and information about their …

Launching DysNet – and how the right education helped one man make a difference, despite disability

For the past two months, in addition to my special needs work, I’ve been working on an exciting project to launch an online community network for people living with limb …