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Resource Hub

Search all our listings and resources categorised below. They include charities, local groups, information links and SEND services. You can also add your own!

RareConnect

RareConnect
RareConnect
Moderated online patient communities for many rare diseases

Living with a rare disease can be an isolating experience. RareConnect was created byEURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders) to provide a safe space where individuals and families affected by rare diseases can connect with each other, share vital experiences, and find helpful information and resources.

Denis Costello
RareConnect
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Europe/Worldwide
Worldwide

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