Catriona Moore has a background in policy and communications and has worked for a number of health and social care organisations. She has also served as an elected councillor in a London borough and a school governor, and was for a short period a trustee of Reverse Rett.
When her younger daughter was diagnosed with Rett Syndrome in 2009 shortly before her second birthday, Catriona found herself dealing in practice with things she’d previously thought she understood in principle.
She juggles her work as policy officer for a national disability charity with caring and advocating for her daughter. She is passionate about improving the lives of disabled children and their families, and making the systems that should support them work more transparently and equitably.
Catriona's posts on SNJ
My “control freak’s guide” for my disabled daughter’s dignity and care in hospital
The thing that worries me most about my disabled daughter as she gets older is who will understand her. Who…Continue reading »
Partnering with clinicians to reverse Rett, my daughter’s rare disease
“Did you say ‘Retz Syndrome’? How do you spell it?” These were the questions I asked the neurologist who speculated…Continue reading »
Fighting for my disabled child’s right to summer fun
Tania's note: Today we're welcoming a new columnist to SNJ, Catriona Moore. Catriona is the parent of a child with…Continue reading »