Autism diagnoses are more common in an IT-rich region.

A new study from Cambridge University has for the first time found that autism diagnoses are more common in an IT-rich region. The Medical Research Council (MRC) funded study, published today in the Journal of Autism and Developmental Disorders, has important implications for service provision in different regions and for the ‘hyper-systemizing’ theory of autism. Professor [...]

New Autism Act Passes Final Hurdle

The National Autistic Society is today celebrating the passing into law of the Autism Act. The following is from their website: The Autism Bill has made it through its final parliamentary stage and will now become the Autism Act. The Act is the first ever disability-specific law in England. The Autism Act started out as a [...]

Don’t Write Me Off – NAS campaign

The National Autistic Society has today released figures showing that only 15% of adults with an autustic spectrum disorder are in full time paid employment.This means that 85% of the 300,000 people with an ASD may only find part-time work, most probably low-paid and rely on family for support and benefits for income. The NAS [...]

Asperger’s Links Blog

I’ve just started another new site which concentrates on resources for people affected by or interested in Asperger Syndrome. It’s called Asperger’s Links and already has several sections, such as Help & Advice, Forums, ASD Blogs, Education etc. I started this so people can find the links and read a short piece about the site [...]

Give ASD children the school provision they need

The Times today (Saturday 13 June 2009) has an article about children with special needs being excluded from school. It points to a recent survey showing that 55 percent of parents of children with autism saying their child had at some point been unofficially excluded from school. Other figures in research by the paper show [...]

Mother behind autism advert meets Brown – London Evening Standard

Mother behind autism advert meets Brown – London Evening Standard A mother who wrote a message to Gordon Brown on billboards across the capital to highlight the plight of autism sufferers is to meet the Prime Minister today. Polly Tommey, from Hampton, whose 13-year-old son Billy has the condition, said she would use their meeting [...]

Child-Free.. as free as the wind blows..

This morning, without so much as a backwards glance, both our boys climbed on board a coach with their classmates and set off for their annual trip to PGL. For us, this means no children in the house for the next four days. We still have the dog of course, but he doesn’t put up [...]

UK lacks Adult Autism/Asperger’s Services

The news today that eight out of ten doctors need more help to spot autism shows the huge gap in services available, particularly for adults with ASD in the UK. The National Audit Office survey found that thousands, especially adults, are failing to get the right diagnosis and hence the right treatment or access to [...]

Many autism cases ‘undiagnosed’ – BBC News

A significant number of children with autism and related disorders could be undiagnosed, a study has suggested.  (Reports BBC News Online) A Cambridge University team looked at existing diagnoses – and carried out recognised tests to assess other children. Of the 20,000 studied, 1% had an autistic spectrum disorder, 12 times higher than the rate [...]

Call for increase in Carer’s Allowance

UK Autism Foundation backs call for an increase in Carer’s Allowance The UK Autism Foundation has backed the call for a substantial increase in the carer’s allowance. There are six million carers in the United Kingdom who look after family members or friends at home and often struggle to pay for their basic needs. Carers [...]

Well said, Mr Bercow!

I’ve just read in full the House of Commons debate on the second reading of the Special Educational Needs and Disability (Support) bill last Friday. I must highlight one particular section of the bill, introduced by John Bercow MP: John Bercow: “Hon. Members have referred to the phenomenon of children suffering from autism. We know [...]

Mother Needs Help For Self-Harming Son

I have just been contacted through this site by Sharon, a mother from Kent, whose son has been excluded from school following incidents of self-harming. She writes, “My ADHD, ASD, Dyslexic, self-harming son, has just been excluded from school, because they don’t think Luke trying to strangle himself in class or him regularly saying he [...]

Government Supports Autism Bill (UK)

The Government has, for the first time, declared its support for what could be England’s first Autism Bill. The National Autistic Society (NAS) celebrated the move as a vital development for people with autism as Care Services Minister Phil Hope committed to enshrining in law a raft of new measures, via the Autism Bill, which [...]

Parents rate local authority Disabilities service at 59%

When I was at school, a score of 59% definitely meant ‘could do better’, if not ‘should do better’. But that’s the score received by 10 local authorities in England for their disability services. The survey, completed by the British Market Research Bureau on behalf of the government was intended to measure parental experience of [...]

Autism Assistance Dogs

As you may know, we recently got a puppy because we had read that dogs are good for children on the autistic spectrum. Leo is still a puppy and has just started training with the scariest dog handler ever, but already he has bonded with our eldest son. Despite instructions from the trainer to ‘ignore [...]

Great News – A Statement!

Got the news we had been waiting for today – Son1 has got the Statement of Special Educational Needs we had applied for. Don’t have all the details yet and we still have to sort out placement (which if I have anything to do with it will be his current school). This time last year [...]

ASD child? Are you getting what you’re entitled to?

If you are the parent of a child with an Autistic Spectrum Disorder, you don’t need me to tell you how difficult a ‘normal’ lifestyle can be. Not only will your child have some level of social and communication difficulties, they may well also need speech and language therapy or regular occupational therapy that unless [...]

Celebrate Calm – well worth signing up for.

I am taking the liberty of quoting from an email newsletter I subscribe to ‘Celebrate Calm, written by Kirk Martin. It is about his son who, like many of our children, marches to the beat of his own drum: “The following message is very personal and my wife never likes me sharing it, but it [...]

The dog, the hand-washing and the ASD child.

As you may have read, we’ve just got a puppy, a labradoodle. He’s very cute and has transformed our elder ASD son’s life. The dog is the first thing he thinks about in the morning and the last thing on his mind at night. He’s even okay at scooping the poop without fuss, although washing [...]

Genetic breakthough in autism

Genes ‘have key role in autism’ – BBC News Scientists have produced the most compelling evidence to date that genetics play a key role in autism. They highlighted tiny genetic changes that appear to have a strong impact on the likelihood of developing autism and related conditions. The changes influence genes which help form and [...]

I knew it was my fault…

Of course it’s our fault.. Mother’s antibodies may contribute to autism Fri Apr 24, 2009 8:18pm EDT NEW YORK (Reuters Health) – While a mother of an autistic child is pregnant, she develops an immune response to her fetus’s brain. As part of that immune response, her body develops antibodies that can attack the fetal [...]

The new arrival

I am not a doggie person. My husband is not a doggie person. And yet, yesterday, we brought home a puppy. Leo the Labradoodle. We have read that dogs are supposedly good for children with autistic spectrum disorders and so, putting our own lack of need for a furry friend to one side, we searched [...]

Autism Costs UK economy £28 billion

A new study into the economic impact of autism spectrum disorders in the UK has shown that the total estimated cost is £28 billion each year. That averages out at £500 each year for every man, woman and child in the country. The study, published in this month’s edition of the journal, Autism, includes estimates [...]

SNM Holiday 3: Incident on the beach

So, we were well into the holiday, we’d done Goonhilly Earth Station where Asperger’s Son2 had had a tantrum because he wasn’t heavy enough to go on the Segway Tour and then Asperger’s Son1 had a tantrum because we said if one couldn’t go then no one would (to avoid unbearable crowing afterwards). We’d done [...]

SNM – Holiday 2 – The Zoo

We booked a day as a zoo-keeper at Newquay zoo for the boys. This was an unparalleled success! The day involved being taken around the zoo with a zoo-keeper, togged up in a special ‘junior zoo-keeper’  T-shirt, feeding the otters and the penguins and generally get a behind-the-scenes look at the life of a zoo [...]

Surrey to review SEN Assessments

I recently attended a Partnership with Parents workshop in Surrey. The subject matters were an explanation of the new SEND rules given by one of the co-chairmen,an update on the Lamb inquiry and a presentation from the new Head of Surrey SEN, Debbie Johnson, asking ‘Why do so many parents appeal against Surrey’s ‘Refusal to [...]

Diary of a Special Needs Mum Pt 1

I was talking to the head of the Juniors Department at my sons’ school the other day. She noted that parents of children without special needs had no idea how tough it was for parents who did have children who are not so-called “normal”. I hadn’t considered this particularly before, even though both my boys [...]

It’s all about the school.

Yesterday, my son was discharged from regular check ups with his nurse practitioner at his specialist clinic, a cause for celebration. She has been a wonderful support to us along the way to getting the best we can for him but now he has started at an appropriate school for his needs, he no longer [...]

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